People
Living with Albinism in Bugisu have decried the high rate of discrimination
they face in the community.
Albinism is a rare genetic condition caused by
mutations, or changes, of certain genes that affect the amount of melanin one’s
body produces. Melanin controls the pigmentation (color) of the skin, eyes and
hair. People with albinism have extremely pale skin, eyes and hair.
Elizabeth Negesa the executive director, Elgon
Foundation for Persons with Albinism (EFPA) says that the discrimination is
evident in schools, health facilities and in the community. Negesa says that
people living with albinism have low vision, therefore requiring children to
sit near the blackboard when in class but this is not implemented by teachers
in most schools.
On employment opportunities, Negesa says that educated
people living with albinism are often sidelined even when they qualify for
certain jobs. She has also decried the negative attitude that the public has
towards them.
Oliver Kakayi the councilor representing people living
with disability in Mbale District says that most women living with disability
are looked often under looked by the community and denied marriage
opportunities and other essential services.
But Peace Musiya a senior three student at Bukonde
Secondary School in Mbale City who is living with albinism says that her fellow
students and teachers have been supportive. Musiya’s dream is to become a
medical doctor.
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