The Ministry of Health has launched mandatory testing of newborn babies for sickle cell disease, a move doctors have described as courageous, saying the genetic condition is a major contributor to Uganda’s persistently high child mortality rates.
Speaking on Monday, shortly after the nationwide screening was launched, Child Health Expert Dr. Deo Munube said studies at Mulago National Referral Hospital found that 25 percent of babies presenting with fever and malaria actually had undiagnosed sickle cell disease.
Munube explained that while the government has successfully targeted other major killers of children, such as pneumonia, diarrhea, and malaria, reductions in infant mortality have not been significant because interventions for sickle cell disease were not reaching babies early enough.
With mandatory screening now in place, Munube said health workers will be able to provide early treatments such as penicillin and malaria prophylaxis, alongside other interventions, before children develop serious complications.
According to Dr. Diana Atwine, Permanent Secretary in the Ministry of Health, screening will be conducted using Rapid Diagnostic Tests (RDTs) at all government-run health facilities before mothers are discharged after childbirth. About 20,000 babies are estimated to be born with sickle cell each year, with 80 percent dying before the age of five.
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